this post was submitted on 04 Jul 2023
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Recently there was a thread in the IAAP discussion board about "dyslexia simulators," software that is meant to simulate the experience to people who do not have dyslexia. The simulators work by taking text on a web page and randomly switching letters around.

In the discussion thread, there was a dissenting voice who shared an article by Carolyn D. Cowen, who objects to the use of these simulators.

To quote Cowen:

As a person with dyslexia, as someone with dyslexia running throughout generations of both branches of my family, and, finally, as an educator who has taught countless children and adults with dyslexia over the decades, I feel pretty confident saying that this simulation is NOTHING like what it is like for most people who have dyslexia.

The simulation is a devilishly clever coding trick and well intentioned, but contrary to the dramatic headlines, it does little to deepen anyone’s understanding about what having dyslexia is really like.

...

the simulation’s likely take-away for the casual viewer with little or no knowledge of dyslexia is that this problem primarily is in the visual domain. From there, it is a short hop to assume that the solutions lie in the same domain.

...

And those notions can lure families into time- and resource-wasting wild-goose chases pursuing costly, ineffective interventions.

If you have dyslexia, would you be interested in commenting on these ideas?

  • Do you think dyslexia simulations are dubious?
  • Do you have a preferred way of describing your experience?
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[–] sim_ 6 points 2 years ago

Maybe I’m not your intended audience, but as a reading researcher, it’s frustrating how pervasive the perception of dyslexia as a visual condition is. As the article says, it risks wasting precious time chasing a path that leads nowhere. Rather, early intervention in proven evidence-based reading instruction is how we, to again borrow from the article, raise the tide to lift all boats.

[–] Piers 5 points 2 years ago (1 children)

As a dyslexic person I can definitely relate to Cowen's concerns regarding the potential harm of people misunderstanding the main issues at play. She gives the example that coloured sheets and paper are offered as a solution for dyslexic people. Personally I do find reading text on a white background much more difficult however tended to run into the issue that once accommodations for this existed (ie, a filter was given to me to lose due to my at the time undiagnosed ADHD, or items were printed for me on coloured rather than white paper) there tended to be an attitude that "well, that's the solution to your dyslexia so we can now move on and forget about it." (ie, when raising that I needed extra support I have been literally told by educational institutions things like "well, you've got your special paper now so there's nothing more we need to do about it".)

[–] dankeck 2 points 2 years ago

Thanks for sharing. That's rough that people just want to check an item off a checklist, rather than actually fix barriers to access..