Stigmatising views, inaccessible public transport, a lack of job and volunteering opportunities, and the failure of schools to make reasonable adjustments, all contribute to the loneliness experienced by young disabled people, according to new government research.

cross-posted from: https://lemmy.blahaj.zone/post/20497164

cross-posted from: https://rblind.com/post/3476242

As part of OurBlind's continued efforts to provide accessible online spaces for the blind and visually impaired community, we've developed custom themes for Lemmy, to use on our Lemmy instance on Rblind, and to make available for others, in keeping with the themes' license terms and the spirit of free and open source software.

If you're reading this on www.rblind.com and are not signed in, you're using RBlind-Dark. We hope you're enjoying it! If you log in, you can switch to RBlind-Light. Once logged in, go to your username, then Settings and, use the Themes dropdown to make your selection: we suggest RBlind-Dark or RBlind-Light at the end of the list.

Why these themes matter to us

We started this Lemmy instance back in 2023, prompted by the Reddit API protests. Reddit Inc., the company that controls the website our community r/Blind is on, had announced policy changes that made the apps most of us used to participate in the Reddit community impossible to maintain. During this time it became clear to us and many other online communities that a corporate-owned platform would always be subject to pressures that are contrary to our needs. We launched this site as our blind-friendly home base in the fediverse, a decentralized and often self-hosted social media platform.

The goal of having our own home server was always to be able to make our own decisions about the software we run on it. One of those decisions is that the visual styling should always be comfortable for low-vision users and other disabled people, as part of our core audience. That meant designing and providing themes that, within our technical limitations, conform to the Web Content Accessibility Guidelines (WCAG).

How we designed our Lemmy themes

OurBlind admins contracted Travis, a talented graphic designer from within the community, for this project. Check out his website here. Together we went over specific requirenments within WCAG and the site's usage, colors, layout, preliminary testing, and communication, to develop both the themes themselves and the framework for future work and sharing.

How these themes meet our goals

In short, the new themes ensure high contrast, colorblind friendly colors, readable fonts, and appropriately-sized and readable buttons and links.

Following are examples of the home feed using the new themes.

RBlind-Dark example

RBlind-Light example

Time for testing and feedback

These have been audited by OurBlind admins, but that's only part of the validation process. If you're using this site and have low vision, colorblindness, a cognitive or a motor disability, consider providing feedback. Do they work well given your needs and use case? Do you like them? Does something not work quite right? Comment below or fill out the anonymous survey. Don't hesitate to comment if you're not a member of this instance or not disabled - we want these to be helpful to as many people as possible. Thank you!

We'll be collecting feedback and open to revisions until February 1st 2025. Even after that, we'll still be interested in your experience, but will take longer to respond and adjust.

How to use these themes on your own instance

As mentioned, this project is all about the value of free and open source software in ensuring control and autonomy. We're making this our home in the fediverse and we want to be good neighbors. We already offer the broader community a place for discussions around blindness, but we also want to contribute back.

These themes are licensed under GNU AFFERO General Public License and available at the Codeberg repo to be used or modified. Updates to the themes that come as a result of user feedback will be available there. Definitely give Travis a star and consider hiring for your own design needs, he's been a delight to work with.

The repo is also mirrored on GitHub for accessibility reasons.

Thanks, from RBlind

This community's journey has been long and thrilling, across three platforms and over a decade. Everybody on the admin and moderation team has deeply benefitted from and grown with the community. These themes are a humble gift to our members and our neighbors on the fediverse. May they make all our lives that bit more comfortable.

[Wong] founded the Disability Visibility Project in 2014, initially as an oral history project designed to collect the stories of disabled people. She has shared these histories in two books, Disability Visibility and Disability Intimacy, and is working on a third.

Wong writes unflinchingly about how US policies and systems fail disabled people, queer people, immigrants and people of color. She writes about her own story – about growing up with a neuromuscular disease, coming into herself and her activism, and a series of medical crises in 2021 that triggered her transformation into a self-described “disabled cyborg” who now relies on a range of technology to stay alive, and a text-to-speech device to communicate.

Over the course of a month, I corresponded with Wong about her life of activism, and her visions for surviving and fighting for human rights in the years to come.

I love these disability T shirts! https://flauntyourability.com/product-category/t-shirt/ @disability@beehaw.org @disability@a.gup.pe

[When Carter] decided to establish himself as a supporter of disability rights during the 1976 presidential election, he visited Warm Springs to make that promise. After he was elected president, however, Carter often struggled to implement key parts of his agenda, and disability rights was no exception. So disabled people had to step in to do the work that the non-disabled simply couldn't get done on their own.

People with disabilities deserve the right to be recognized as potentially sexual beings, but oftentimes they are not.§ Little has been done to end the discriminatory attitudes of the prevailing mainstream society toward the sexuality of people with disabilities. There is a long history of treating the sexuality of people with disabilities as “deviant” and something that should be suppressed, rather than a natural human desire. According to Tom Shakespeare, a leading disability rights scholar, people with disabilities are seen only on two ends of a spectrum: either completely asexual or “perverse” and hypersexual.54 A portrayal of a diverse group of people as only on one or the other end of a spectrum of sexuality minimizes the breadth of their experiences and perpetuates stereotypes. For example, there are some people with disabilities who may enjoy having a lot of sex, some who only have sex occasionally, and some who are asexual. For LGBTQ and BIPOC people with disabilities, these stereotypes can be further compounded by stereotypes and stigma rooted in racist and heterosexist conceptions of sexuality and sexual expression.

People with disabilities also struggle to assert their sexuality due to the prevailing notion that they are unable to consent, which has historically been shared by medical professionals.55 People with disabilities are often forced to prove to the state that they have the capacity to express or deny consent to sexual activity. There is no national consensus on what these types of “consent assessments” should entail, but they generally touch on a person’s knowledge surrounding the physical and emotional consequences of sex, their ability to engage in a rational process of decision-making, and their understanding of choice.56 This type of knowledge is generally covered in sex ed classes, to which, as previously stated, people with disabilities frequently lack access. Therefore, many people with disabilities are judged incapable of consent based on a lack of knowledge that is itself the result of inadequate or unavailable sex ed

cross-posted from: https://lemmy.sdf.org/post/25631671

How to Train Friends and Family on a Screen Reader

November 26, 2024 2:00 – 3:30 p.m. EST

Learning access technology can appear daunting to a newly blind person. Finding quality access technology training can also be difficult for several factors. This is where technology savvy friends and family can help someone start learning how to use a screen reader. Join the National Federation of the Blind on Tuesday, November 26, from 2:00 p.m.-3:30 p.m. eastern to learn how you can teach a friend or family member how to get started with a screen reader. We will cover:

• How a screen reader works
• How screen readers present content
• Common keyboard shortcuts to start with
• Further training resources to learn how to use multiple screen readers

For people with rare diseases—estimated to be between 263 and 446 million people worldwide—finding the right doctors and treatments can feel like a Herculean feat, a reality Alexandria knew all too well. “There is no long-term cure,” she wrote. “I’m very very very sick, things are progressing fast. I’m wheelchair or bed bound most of the time. I had 16 seizures yesterday and over 30 stiff person attacks.”

In the United States, rare-disease patients often go into significant medical debt to pursue treatment, even traveling to different states to see specialists with months-long waiting lists. In addition to the monetary burden, those seeking treatment for rare diseases also face a mental, emotional, and spiritual toll.

In the face of these obstacles, rare-disease patients like Durán must relentlessly call insurance companies and medical offices, create and share resources, and form care networks to lift some of the burden—and help keep them alive.

In this post, I seek to understand and explain the pervasive phenomenon of COVID denialism from the perspecitve of disability justice, specifically as someone who remains extremely cautious and anticipates doing so indefinitely. It's not intended to excuse this behavior—denialism is actively harmful to everyone the denialist interacts with and fundamentally eugenicist in effect whether or not in intention. But understanding and even empathizing with people who believe falsehoods and do harm can be valuable, especially when they make up such a huge portion of the world and for many of us are inescapably part of our networks and communities.

For unions, Covid-19 was a wake-up call. Large numbers of unit members were suddenly affected by disability issues: Workers needed paid sick leave, personal protective equipment, workplace accommodations, and help balancing caregiving needs. Disabled union members and organizers, who are often familiar with the Americans with Disabilities Act of 1990 and their rights under the law, became especially important. Many disabled workers told me that since the start of the pandemic, their unions have given them more responsibility and that a union’s willingness to collaborate with disabled members is crucial to determining how effective it can be in helping all of its members.

Bryan noted that the union framework provides an ideal avenue for ensuring that disabled people’s needs are heard. By design, unions uplift all workers by way of facilitating coordinated, collaborative actions. A collective union action pushing for better ventilation at work, for example, has a much higher impact than a single disabled worker asking for this accommodation. Solidarity between disabled and nondisabled members also makes it clear to bosses that workers are invested in inclusion for everyone—and as a marginalized community, disabled people are more vulnerable to discrimination at work that unions can help them fight. For the CFA, that inclusion started with advertising accommodations and supports at meetings to make it clear that disabled workers would be both welcome and heard, increasing meeting turnout and interest in engaging with the union. She said, “If you put the accommodations out there and let people know they’re there, they will come.”

The AIDS Coalition to Unleash Power New York (ACT UP), the flagship branch of the historic and global AIDS organization, attracted controversy on social media this summer around statements related to the Covid-19 pandemic. On July 19, ACT UP angered disabled and Covid cautious people with a Twitter thread that aligned people who criticize others for not wearing a mask with the historic criminalization of HIV patients. As many pointed out in response, people who wear masks are the vulnerable marginalized group currently being stigmatized and criminalized, not unmasked people who spread airborne disease. The thread also offered the nihilistic and deadly proposition that “people cannot prevent themselves from getting Covid in perpetuity.”

A question for those that may be hearing impaired, or otherwise use TV and movie subtitles frequently...

Do you have a favorite subtitle font? Do you have any further config preferences, like color or border?

I'm working on making a video player script UI more accessible, and I'd love some input.

cross-posted from: https://beehaw.org/post/15522654

This is more philosophical than practical and hopefully it's appropriate to the community.

This is something I've pondered over since I was young. What first got it running through my head was when my grandfather developed COPD and at about 10 I was tasked with helping him figure out his inhalers because I already had about a decade of experience using them. He was a very physical, active man. He was a WW2 veteran, he was a master carpenter and had built his own company, he was an expert woodsman and survivalist. Then he developed COPD and then Parkinson's. He had opportunities and accomplishments and a life that was forever closed off to me and that was a burden but I think he had at least an equal burden of having the knowledge, experience, and drive to continue to live as he previously had but no longer the physical ability. He had to relearn how to do lots of things with his new limitations as his Parkinson's progressed and it always seemed to me that it was an advantage that I never had to relearn things, I had figured out alternatives that worked for me to begin with. The biggest advantage to our situations was that we both had someone to have real conversations with about what we were dealing with. Someone it was ok to not be ok with.

Accessibility has come a long way since I was a child. Sports associations took way too long to decide that corticosteroids and anabolic steroids are not the same thing. You had to walk through the smoking section to get to the non-smoking section that was in the same room with no dividers or anything, sometimes even in medical offices. When I went to college I chose the one that I did because it actually had an office for students with disabilities. It was at the top of a hill in an old converted house that could only be entered using stairs and the closet disabled parking was a quarter mile away but it existed. The one counselor in the office basically set up a second office in a library study room so that students could actually meet with her and unfortunately she wasn't always convinced that invisible disabilities were legitimate. She did help with making sure I didn't have back to back classes on the opposite side of campus and she passed information from my doctor to the professor in my physical education requirement so I got what I needed from her without too much arguing.

A lot of the progress is really just awareness and destigmatation. It was very important to my parents and kindergarten teacher that I did not have autism, I have Asperger's. They thought that people with autism were mostly nonverbal, never did well in school, and had no future so the testing that said I was mildly autistic disappeared and I didn't find out about it until I was diagnosed in my early twenties and my grandmother told me that "we" already knew. I still don't disclose my disabilities unless I have to but it's kinda amazing how open people can be about their health issues and need for accommodation now.

There is no way to measure the cost of one form of labor in comparison to another in some generalized way. Less labor simply isn't the same direction for everyone, or even always a direction at all. Doing things faster may exhaust you longer, for example, it is always a trade off. On top of this, while many accessibility tools allow people to do things they could not otherwise, many instead allow people to do those things more safely or with another part of their body.

The key to accessibility has always been variety, being able to interact with things in as many different ways as possible. Making it simple isn't enough, making the requirements "low" isn't enough. You can't demand everyone take a specific path.

I have seen this as a big issue in art, in both ways. First people saying that one type of art takes "no effort", because they discount those types of labor. They see that one type of labor is not used that they expect, and do not realize or care that it must be replaced with another kind of labor. Different varieties of digital art often seem to experience this, especially those that don't start out with visual work and instead start with words or equations.

Then there are people saying that other methods of art are "easy enough" to be the moral option you must pick instead. I have seen so many posts of people saying "look, this person with no hands can pick up a paintbrush, you have no excuse to not being doing that instead".

Both of those are ableist, and sadly I see them in even "leftist" spaces all the time.

My best friend broke both of his arms and wrists, and will have zero use for 3-4 months. I'm trying to figure out some way for him to play videogames while recovering. Maybe some kind of foot controller? A mouth controller?

He's feeling miserable from the pain and I know that gaming would take his mind off of it.

Please let me know if you have any ideas.