Ugh, sorry that happened to you!
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Hi! I didn't realise.
If you want to be involved there too, I can add you!
I remember you!!! Yeah that person was a bit hard to understand. Sometimes I couldn't see their posts.
I really appreciated you standing up for me about conserving traditions! :-) ♡
Thanks! It's so nice knowing it won't all be deleted!
Thank you for the idea. I'm not sure how to contact Ernest?
Ahhh, I'm so disappointed, I've been working on @conservative for months, and really hoping to take it on,
and it looks like I missed out.
Back when I started they actually held a poll about whether my kind of nature content would be OK and it was voted yes, so I hope the new owner is pro-conserving things and doesn't purge it and turn it into just another US politics sub!
If you have been diagnosed with this I suggest you seek a second opinion.
Unfortunately there is a long and shameful history of certain doctors ignoring the physical aspects of me/cfs and trying to class it as psychosomatic or a conversion disorder.
Multiple sclerosis used to have the same problem and was seen as "hysterical paralysis".
For example, myalgic encephalomyelitis (sometimes referred to as chronic fatigue syndrome) has been dismissed and under-researched for decades. The lack of research has perpetuated a limited understanding of the underlying biology, a lack of diagnostic testing, a lack of respect for patient experiences and an embarrassing lack of action. Research funding is extremely low relative to the burden of the disease and its prevalence.
About half of long COVID patients also meet the diagnostic criteria for myalgic encephalomyelitis. By our sheer number, our advocacy for more research and clinical trials should be harder to dismiss.
This is dismissed and underfunded world-wide.
The status quo - pretending it's all in your head - is in the interests of insurance companies (and governments with disability welfare systems).
This literally happened to me, only I lost way more than half my income.
It's horrible, and frequently remembering the life I had is very painful.
I can't work out what possible upside you think there is to this situation.