this post was submitted on 14 Oct 2023
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Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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This is a new place for people coming from r/cfs.

For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.

Icon based on the Lemmy logo by Andy Cuccaro licensed under the Creative Commons Attribution-Share Alike 4.0 International license. Eyes taken from the r/cfs logo.

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Functional Neurological Disorder aka Dissociative neurological symptom disorder aka Conversion Disorder?

The latter has the following diagnostic criteria in DSM V:

  1. One or more symptoms of altered voluntary motor or sensory function.
  2. Clinical findings can provide evidence of incompatibility between the symptom and recognized neurological or medical conditions.
  3. Another medical or mental disorder does not better explain the symptom or deficit.
  4. The symptom or deficit results in clinically significant distress or impairment in social, occupational, or other vital areas of functioning or warrants medical evaluation.

https://en.wikipedia.org/wiki/Functional_neurologic_disorder?wprov=sfti1

We don’t seem to have a Lemmy community for any of these yet? True? Maybe we need to get together on ‘Diagnoses of exclusion’?

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[–] liv@kbin.social 4 points 1 year ago (1 children)

If you have been diagnosed with this I suggest you seek a second opinion.

Unfortunately there is a long and shameful history of certain doctors ignoring the physical aspects of me/cfs and trying to class it as psychosomatic or a conversion disorder.

Multiple sclerosis used to have the same problem and was seen as "hysterical paralysis".

[–] StoneGender@lemmy.blahaj.zone 1 points 10 months ago (1 children)

Seconded, I was given this as a explanation and its turned out I had long covid.

[–] liv@kbin.social 2 points 9 months ago

Ugh, sorry that happened to you!