196

661 readers

9 users here now

Be sure to follow the rule before you head out.

Rule: You must post before you leave.

Other rules

Behavior rules:

No bigotry (transphobia, racism, etc…)
No genocide denial
No support for authoritarian behaviour (incl. Tankies)
No namecalling
Accounts from lemmygrad.ml, threads.net, or hexbear.net are held to higher standards
Other things seen as cleary bad

Posting rules:

No AI generated content (DALL-E etc…)
No advertisements
No gore / violence
Mutual aid posts are not allowed

NSFW: NSFW content is permitted but it must be tagged and have content warnings. Anything that doesn't adhere to this will be removed. Content warnings should be added like: [penis], [explicit description of sex]. Non-sexualized breasts of any gender are not considered inappropriate and therefore do not need to be blurred/tagged.

If you have any questions, feel free to contact us on our matrix channel or email.

Other 196's:

founded 2 years ago

MODERATORS

moss@lemmy.blahaj.zone

greembow@lemmy.blahaj.zone

queue

funky_rodent@lemmy.blahaj.zone

PeachyMcPeachface@lemmy.blahaj.zone

remotelove@lemmy.ca

Roflmasterbigpimp@feddit.de

A_Very_Big_Fan@lemm.ee

qaz@lemmy.blahaj.zone

qaz@lemmy.sdf.org

22 cis woman. trying to find AFAB's who understand me rule (lemmy.ml)

submitted 2 years ago* (last edited 2 years ago) by calculusqu33n@lemmy.ml to c/196@lemmy.blahaj.zone

8 comments fedilink hide all child comments

Hello! My phone’s on 5% so I’m typing really fast right now; apologies for typos &/or poor grammar! I deleted reddit when the protests happened in June/July (??) & switched over here to lemmy. I suspect i have endometriosis and I used to love the endo communities on reddit, but i no longer have access to that & i’m just feeling kind of alone i guess …. So far, I’ve felt the most at-home here, which is why I’m posting this here, and I’m just curious to know if there’s anyone on here who has a uterus & either suspects they have endometriosis or has an actual diagnosis. I have a consultation lined up later this month. I’m just in a lot of physical pain & i don’t want to feel alone right now. I keep trying to find communities here on lemmy where it’s appropriate for me to talk about this stuff but it’s all been to no avail. Sorry if this isn’t allowed. Thank you for reading :,) <3

TL,DR: i think i have endometriosis and i don’t want to be alone, so I’m desperately searching all over lemmy to find people who understand me & relate to my experience

top 8 comments

sorted by: hot top controversial new old

[–] stoneparchment@possumpat.io 29 points 2 years ago (1 children)

I don't want this to be an accusation about lemmy's user base, so take this next comment with a grain of salt:

I feel like lemmy slants male the same way early reddit did, and the same way a lot of more technical communities seem to. I've definitely seen threads where the perspectives being shared feel alien and out of touch, and although I'm sure that they have valuable insights about many topics, it does feel kind of... homogenous?

One specific example is the threads arguing about whether to make lemmy more like reddit or not. Often, there are a lot of comments arguing that they don't want to change lemmy in ways that would make it more inviting, because then more people from reddit would show up. The implication is that the average user of reddit is an idiot or should be unwelcome in some way, but to me it seems that they are just trying to select for men in technical disciplines and who have similar world views to the current user base. Idk, it's not a great look.

Anyway, I'm non-binary and I don't have endometriosis so I'm probably not part of the communities you're looking for... still, I wish you all the best looking for your space. I think it's truly less homogenous here than it seems... We'll get more diverse perspectives over time!

[–] calculusqu33n@lemmy.ml 7 points 2 years ago

Thank you so much for responding!! You’ll have to forgive me, I’m currently having a flare up & currently in the midst of midterms, so my energy’s a bit low & my response might not be as thorough as i would like. I don’t want to leave you hanging though; this response was super touching & i’m very grateful for the support <3 <3 perhaps the reasons you mentioned are exactly why i feel so comfortable in this space; the crowd is much more diverse here & i feel like i fit in a lot better here. i see lots of room for growth on lemmy as a whole but i’m very grateful for this space; thank you to everyone on here for existing <3

[–] Letstakealook@lemm.ee 13 points 2 years ago (1 children)

I found this:

https://www.myendometriosisteam.com/

It isn't lemmy, and I can't speak to how it is, as I'm a guy. Might be worth checking out, though. It was recommended from speakendo.com.

[–] calculusqu33n@lemmy.ml 7 points 2 years ago (1 children)

Thank you so much for sharing this!! I’ll definitely check it out!! :))

[–] Letstakealook@lemm.ee 4 points 2 years ago

Np, hope it helps.

[–] ZoeyBear 10 points 2 years ago* (last edited 2 years ago)

I can 100% relate while I’m intersex (no assignment at birth, identify as female and have equipment minus uterus now) I still understand where you are at with the amount of pain you are in. I had a hysterectomy several years ago and it made me feel so much better. If you are curious about that process I can expand.

[–] CreateProblems@corndog.social 3 points 2 years ago

If you're in the US, see if you can get into "Nancy's Nook Endometriosis Education" Facebook group. I don't normally recommend Facebook but I was pointed to this group from Reddit originally. Not only will you find a community of people experiencing similar things as you, they also have a list of endo-educated doctors in the US.

[–] calculusqu33n@lemmy.ml 1 points 2 years ago

There are a few comments on here that I don’t have the energy to appropriately respond to rn (i’ve gotten 8 hrs of sleep in the past 3 days) (22f physics major in the middle of midterms lol) but i just want to say thank you to every single person on here from the bottom of my heart. Truly. Thank you for making my feelings of loneliness & isolation surrounding this experience melt away. Thank you for giving me a sense of community, for empathizing with me, sharing your experiences, & for giving me all of these resources. You all just seem like such wonderful human beings & I’m so grateful for you all. I hope you all have a beautiful day. I’m gonna try to respond individually to everyone as soon as I can !!!!💗💗💗💗💗💗